Reloading pages...

The online Down syndrome community is a strong one, even though most of us will never meet in person.

We share joy, inspiration, sadness, grief, frustration, love, and teaching one another, as parents who are dealing with some of the same issues our sweet little ones may face.

Because of our community, the face of Down syndrome is changing.

Children have more opportunities then ever imagined before.

Teenagers are graduating high school with general education degrees, and even as members of the National Honor Society.

Adults are going to, and graduating, college, marrying, living independently, and experiencing very fulfilling lives.

Life as a person with Down syndrome can be a beautiful thing.

Maybe this is why there is a fantastic bond which connects the parents of these inspirational people.

It doesn’t matter what your political or spiritual beliefs may be; what color your skin is or what country you live in; whether you are a multi-millionaire (which most of us wish we were ;)) or collecting welfare; there is a very unique tie between us all.

The last week has been a very tough one for us. We have lost a beautiful princess and have other children who are critically ill.

We have been continuously reloading blogs and Facebook pages, to get a glimpse of hope that all is well with those we love.

It is because of this indescribable, yet amazing, bond we share which makes weeks like these so hard. We mourn for our brothers and sisters, their families, and those incredible children who we feel so close to.

We realize life is so very fragile, especially when you are faced with the many medical concerns which go along with Down syndrome.

We put ourselves in our friends’ shoes because we could very well be in the same place some day.

Our hearts break for those we love, and our days are filled with prayer for them, at least I that's the way it is for me...

“ And if thou shouldst be cast into the pit, or into the hands of murderers, and the sentence of death passed upon thee; if thou be cast into the deep; if the billowing surge conspire against thee; if fierce winds become thine enemy; if the heavens gather blackness, and all the elements combine to hedge up the way; and above all, if the very jaws of hell shall gape open the mouth wide after thee, know thou, my son, that all these things shall give thee experience, and shall be for thy good.” (D&C 122:7)