Yesterday we
had Leah's first CSE meeting.
It started
and ended great… but in between was kinda testy.
Just so it's out there- when I am frustrated,
or angry, or nervous, my face gets red, my voice gets shaky, and everyone
around me can totally feel my emotions.
Especially when it comes to my kids.
I have gained a lot of control of
this behavior in the past few years, but it still sits somewhere in my body,
just waiting to come out!
And it was
out yesterday.
The beginning
of the meeting was full of smiles and jokes.
We went over
Leah's evaluation results and there was not much surprising information in
them.
The
therapists were very warm and loving.
They also made sure to let me know that they see greatness in Leah and
that they will work very hard to help her get her greatness out. Who can ask
for more than that?
(BTW- Leah's social skills are
totally age- appropriate or above average J)
We came to
agreement on her placement: Integrated Classroom. Her class will have about a 50/50 split of
children with special needs and typical children. There will be 1 regular education teacher, 1 special
education teacher (for 130 minutes a day), and 1 teacher's aid in the classroom
at all times. Leah will have a personal
aid to assist with safety concerns during transitions to specials and
lunch. Because of difficulty in
scheduling, Leah will have this aid for the entire day, however we will
be meeting as a team over the summer to discuss our expectations for the aid
because we do NOT want him/her to be constantly at Leah's side. Leah
does well with independence, and we want her to have the opportunity to
be as independent as she can be.
We came to
an agreement about the amount of (most) of her therapies.
Then came
music therapy (MT).
A little more background- Leah does
amazingly well with music therapy! It
has helped her develop confidence, strengthen her social skills, follow
directions, share, take turns, increase her sentence abilities, and her articulation.
Every one of her current therapists
comment about the growth in Leah's abilities when music is involved.
I have been strongly encouraged to
advocate for MT even though our district currently does not contract with a
music therapist. The consensus is that
MT is essential to helping Leah succeed.
After
everything else was settled, I asked about music therapy.
CSE Chair- "We
do not contract with a music therapist. It will take a long time to get a
contract with one, but it can be done. However, Leah is already out of the classroom
so much with her therapies, I don't think it would be good for her to add to
her time away from the class.
Me-
"You're right, she is out of the classroom a lot, but I wanted her MT to
be pushed in."
Face getting red.
CSE Chair-
"We will not have MT pushed in. If she has it, it will be pulled-out. We
will not take away from curriculum time for MT. There is no way we will be able
to have a music therapist in the classroom."
Blood pressure starting to rise.
Me-
"That's not ok. You're telling me that you do not have 30 minutes a week
to give in the classroom for MT? Music therapy would be for Leah specifically,
but all of the children would benefit from it."
CSE Chair-
"This service would be for your daughter, not for the classroom. I cannot speak for the other children in the
classroom. I don't know if the parent's would approve."
Voice starting to shake.
Me-
"This is a blended classroom. Do
the parents not know that their children are in this type of classroom? I have had
two other children in integrated classrooms in our previous district as typical peer models, and I was
told that they would be in those classes before school started. I would assume
that you also would notify the parents of the classroom status, shouldn't they
be prepared for this type of service around their children?"
CSE Chair
and Principal- "We will not take away from the time dedicated for the
curriculum for music therapy."
Me- "If
you don't have 30 minutes a week to take away from the curriculum then I think
that the curriculum needs to be rethought."
Start the knee nudges from the hubby.
(Remember I was strongly encouraged
to advocate for this service by many people, including the district
psychologist and one of the district's speech therapist's)
CSE Chair-
"There is no way to have push-in music therapy. If you want it for Leah, then she will have
to have it 1:1 pulled out."
Me-
"Well, what else can we take away then. Not having MT is not an
option and she is already pulled out a lot?"
Knee nudge.
We start to
go over her plan and almost have 1 physical therapy pushed into her gym class, but it doesn't
feel right.
Me- "I
think this is a sticking point. Maybe I need to end the meeting, do my research
on music therapy, and hire an advocate.
Music therapy is essential to Leah's development."
CSE Chair- "If
that's what you feel you need to do…"
Me-
"The reason I want Leah's MT to be pushed in is for her social
skills. Yes, those skills are her best,
but she still has a hard time initiating play with her peers. MT helps her
learn to share, communicate, and take turns.
Is this not an issue for all kindergartners? How would this not help the entire
class?"
Then the
speech therapist (SLP) who would be working with Leah speaks up!
SLP- "What
if I coteach with the MT during one of Leah's small groups? I think it would be
great for all of those children, and I would be willing to do that… I would
love to do that."
Blood pressure lowering, voice
becoming steady, face color returning to normal.
Me- "I
think that's a great idea!"
CSE Chair-
"If you would be willing to coteach, then I think we can do that. I will
have some work to do to find a therapist, but I will get on it."
And we're
done.
Whoo hoo!!!
It's not
exactly what I was looking for, but it is a start.
It was a
very good compromise.
I am glad we
stuck to it.
I'm glad I
didn't give up.
I'm grateful
for a team who was willing to find a way to satisfy everyone's concerns.
Sometimes
it's best to keep fighting even when your unfavorable emotions come out, and
even sometimes when your husband keeps nudging you to quit.
I felt the
spirit with me when I explained why I wanted Leah to have MT in a group
setting. That same spirit must have
touched everyone else in the room as well because there was an undeniable calm
suddenly present.Only after I explained my reasons, was a compromise made.
Maybe those
prayers are working.
Here's to a
great kindergarten year for my sweetie.
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